My Everyday As I sit here and write... I know it could be worse but could also be better.... I know my pain is little compared to others but also some have no clue.... I face everyday wondering how I can help better my child... I wonder why in this world it has to be … Continue reading My Everyday
Where do I begin... Faith has gotten me to where I am today but that does not mean it has not been a struggle! I struggle DAILY but I have to continuously tell myself that "God brought me to it, he will bring me through it". Yes, if you look at me I am a … Continue reading Struggles Behind The Faith
Why is it so hard?!?! I do not understand... why it takes so much to get someone to care for your child. Talynn has been sick for a week and a half and we still do not know all the reasons. We do know that Feb. 5th she had her vaccines, Feb. 7th she went … Continue reading Why is it so hard?!? !
Who am I? I am a physical, occupational, speech, and respiratory therapist, nurse, doctor, teacher, data collector, data analyzer, accountant, photographer, advocate, but most of all I am a MOM! Talynn is not your everyday child. She requires a lot more than the normal. I wanted to share with you some of the things that … Continue reading Who am I?
Children with Bohring-Opitz Syndrome are very prone to respiratory infections. With this being said, Talynn is kept inside majority of the time and is not exposed to a lot of people. Of course when we go out Talynn can sometimes go but we keep her covered. It is not easy explaining to people to stay … Continue reading Sharing ❤