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Bohring-Opitz Syndrome

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Tag: Sickness

My Everyday

May 20, 2015May 20, 20151 Comment

My Everyday As I sit here and write... I know it could be worse but could also be better.... I know my pain is little compared to others but also some have no clue.... I face everyday wondering how I can help better my child... I wonder why in this world it has to be … Continue reading My Everyday

Struggles Behind The Faith

April 1, 2015April 1, 2015Leave a comment

Where do I begin... Faith has gotten me to where I am today but that does not mean it has not been a struggle! I struggle DAILY but I have to continuously tell myself that "God brought me to it, he will bring me through it".  Yes, if you look at me I am a … Continue reading Struggles Behind The Faith

Why is it so hard?!? !

February 18, 2015February 18, 2015Leave a comment

Why is it so hard?!?! I do not understand... why it takes so much to get someone to care for your child.  Talynn has been sick for a week and a half and we still do not know all the reasons.  We do know that Feb. 5th she had her vaccines, Feb. 7th she went … Continue reading Why is it so hard?!? !

Who am I?

February 12, 2015February 12, 2015Leave a comment

Who am I? I am a physical, occupational, speech, and respiratory therapist, nurse, doctor, teacher, data collector, data analyzer, accountant, photographer, advocate, but most of all I am a MOM! Talynn is not your everyday child.  She requires a lot more than the normal.  I wanted to share with you some of the things that … Continue reading Who am I?

Sharing <3

January 25, 2015February 6, 20152 Comments

Children with Bohring-Opitz Syndrome are very prone to respiratory infections.  With this being said, Talynn is kept inside majority of the time and is not exposed to a lot of people.  Of course when we go out Talynn can sometimes go but we keep her covered.  It is not easy explaining to people to stay … Continue reading Sharing ❤

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