Mommy of BOS

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About Taylor Gurganus:

Hi! I hope you enjoy reading my blogs and learning more about what life is like living with Bohring-Opitz Syndrome.  Please feel free to send me an email with any questions or comments you may have. I love sharing what I know and appreciate any suggestions you have.

Screen Shot 2017-01-25 at 9.59.28 AM.pngHere is a brief bio about me: I am a mother of two girls, Talynn and Tinlee, and wife to Chad Gurganus. I teach 4th grade math and science at Gates County Public Schools. I have pushed to raise more awareness for Talynn and BOS.  I am the Co-founder and Vice Chair for the Bohring-Opitz Syndrome Foundation.

Talynn turned three in January 2017.  She was diagnosed with Bohring-Opitz Syndrome right before her first birthday.  Tinlee is the little sister who was born in November 2015. Both of the girls are loving, happy, and a true blessing.  They have taught me how to become an advocate, nurse, teacher, physical therapist, respiratory therapist, dietitian, and most of all a MOM! The title MOM has a whole new meaning when your child has been diagnosed with a rare genetic syndrome!

I am writing this blog to help raise awareness for this syndrome and to let others know what it is like walking in this journey!DSC_1430

Taylor Gurganus

tngurganus@gmail.com

For more information visit the following websites:

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