Services being cut for medically fragile children!

Talynn has been denied skilled nursing because Talynn's ADL needs and GI tube feedings can be delegated to a PNA (CNA). This means that Division of Medical Assistance (DMA) believes Talynn can be cared for by someone who cannot give medications nor administer or adjust oxygen. Respiratory is the leading cause of death for children living with Bohring-Opitz Syndrome.

Blessed <3

BLESSED Yesterday, Chad and I were in total SHOCK with ALL of the people that were supporting Talynn and Bohring-Opitz Syndrome!! I cannot begin to express how thankful we are! We have also had the pleasure to be in many different articles. Please feel free to check them out and share them with your friends … Continue reading Blessed ❤

Disability or Disabled… that is the question I may NEVER understand!

Let's start from the beginning.... Talynn was born at 35 weeks and spent 3.5 weeks in the NICU.  During that time, I stayed at the Ronald McDonald house in Norfolk.  After being discharged, we ended up with TWELVE different doctors and hospitalizations EVERY month since July.  During each hospitalization we stayed anywhere from 2-5 days. … Continue reading Disability or Disabled… that is the question I may NEVER understand!