Carrie’s Rare Disease Advocate Spotlight

Carrie Ostrea is a truly an amazing advocate not only for her daughters disease but many others. I met Carrie when I did my first Rare Round at Children’s Hospital of Kings Daughters with Global Genes. At that time, Carrie was working with Global Genes and we chatted via email. This past February, I was able to put a face with the name. I met Carrie in person at Rare Disease Week on Capitol Hill. Carrie is a very genuine and kind person that I am glad to know! Carrie consults other Rare Disease Foundations and many others. I highly recommend getting in contact with her for any of your Rare Disease needs. This week, I was excited to see that I was featured in her Rare Disease Advocate Spotlight! Click here to read all about it!



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