The Unknown

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The unknown is one of the hardest parts about having a child with a rare syndrome.  Times like this help me realize that I need to rely more on God because he knows what is best for me and his timing is always right.  I struggle when I know my child is not herself but no one has an answer.   I continue to pray each and every night that one of Talynn’s 13 doctors will have some kind of explanation as to what causes these all of a sudden changes.  I also spend most of my nights researching anything and everything I can that would possibly be an answer.  My prayer is one day the spells that BOS children have will have a reason that us parents can fix.

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