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Bohring-Opitz Syndrome

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Tag: Words

My Everyday

May 20, 2015May 20, 20151 Comment

My Everyday As I sit here and write... I know it could be worse but could also be better.... I know my pain is little compared to others but also some have no clue.... I face everyday wondering how I can help better my child... I wonder why in this world it has to be … Continue reading My Everyday

Struggles Behind The Faith

April 1, 2015April 1, 2015Leave a comment

Where do I begin... Faith has gotten me to where I am today but that does not mean it has not been a struggle! I struggle DAILY but I have to continuously tell myself that "God brought me to it, he will bring me through it".  Yes, if you look at me I am a … Continue reading Struggles Behind The Faith

Awareness

March 10, 2015March 14, 2016Leave a comment

Bohring-Opitz Syndrome Awareness Day (April 6th) Awareness: noun 1.the state or condition of being aware; having knowledge; consciousness: http://dictionary.reference.com/browse/awareness Awareness is something that I enjoy doing. I do it because I do not want to see another family/child go through the pain of being undiagnosed.  My child went almost a year without answers.  I cannot … Continue reading Awareness

The Wrong Words…

February 6, 2015February 6, 20153 Comments

The Wrong Words… “I don’t know how you do it”… Do I really have a choice???  This is not the life I chose but the life that chose me!  I would not change it.  Just like most moms (we all know the other kinds) you fight for your child, you do not take NO as … Continue reading The Wrong Words…

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