My Everyday As I sit here and write... I know it could be worse but could also be better.... I know my pain is little compared to others but also some have no clue.... I face everyday wondering how I can help better my child... I wonder why in this world it has to be … Continue reading My Everyday
Tag: Words
Struggles Behind The Faith
Where do I begin... Faith has gotten me to where I am today but that does not mean it has not been a struggle! I struggle DAILY but I have to continuously tell myself that "God brought me to it, he will bring me through it". Yes, if you look at me I am a … Continue reading Struggles Behind The Faith
Awareness
Bohring-Opitz Syndrome Awareness Day (April 6th) Awareness: noun 1.the state or condition of being aware; having knowledge; consciousness: http://dictionary.reference.com/browse/awareness Awareness is something that I enjoy doing. I do it because I do not want to see another family/child go through the pain of being undiagnosed. My child went almost a year without answers. I cannot … Continue reading Awareness
The Wrong Words…
The Wrong Words… “I don’t know how you do it”… Do I really have a choice??? This is not the life I chose but the life that chose me! I would not change it. Just like most moms (we all know the other kinds) you fight for your child, you do not take NO as … Continue reading The Wrong Words…