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Bohring-Opitz Syndrome

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Tag: Sharing

Awareness

March 10, 2015March 14, 2016Leave a comment

Bohring-Opitz Syndrome Awareness Day (April 6th) Awareness: noun 1.the state or condition of being aware; having knowledge; consciousness: http://dictionary.reference.com/browse/awareness Awareness is something that I enjoy doing. I do it because I do not want to see another family/child go through the pain of being undiagnosed.  My child went almost a year without answers.  I cannot … Continue reading Awareness

Why is it so hard?!? !

February 18, 2015February 18, 2015Leave a comment

Why is it so hard?!?! I do not understand... why it takes so much to get someone to care for your child.  Talynn has been sick for a week and a half and we still do not know all the reasons.  We do know that Feb. 5th she had her vaccines, Feb. 7th she went … Continue reading Why is it so hard?!? !

Sharing <3

January 25, 2015February 6, 20152 Comments

Children with Bohring-Opitz Syndrome are very prone to respiratory infections.  With this being said, Talynn is kept inside majority of the time and is not exposed to a lot of people.  Of course when we go out Talynn can sometimes go but we keep her covered.  It is not easy explaining to people to stay … Continue reading Sharing ❤

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