Bohring-Opitz Syndrome Awareness Day (April 6th) Awareness: noun 1.the state or condition of being aware; having knowledge; consciousness: http://dictionary.reference.com/browse/awareness Awareness is something that I enjoy doing. I do it because I do not want to see another family/child go through the pain of being undiagnosed. My child went almost a year without answers. I cannot … Continue reading Awareness
Why is it so hard?!?! I do not understand... why it takes so much to get someone to care for your child. Talynn has been sick for a week and a half and we still do not know all the reasons. We do know that Feb. 5th she had her vaccines, Feb. 7th she went … Continue reading Why is it so hard?!? !
Children with Bohring-Opitz Syndrome are very prone to respiratory infections. With this being said, Talynn is kept inside majority of the time and is not exposed to a lot of people. Of course when we go out Talynn can sometimes go but we keep her covered. It is not easy explaining to people to stay … Continue reading Sharing ❤