Everyday, I hear parents talking about how their child did at the t-ball game or dance recital, I look at photos of children interacting with one another , these everyday life interactions with children are the norm.  Medically fragile children don't have groups they "fit in", especially ones living with Bohring-Opitz Syndrome. There are fewer … Continue reading “Fitting in”–Interacting with one another 

Talynn is a little girl living with a rare genetic syndrome called Bohring-Opitz. There are fewer than 60 cases in the world. April 6, 2016 is the awareness day for BOS and we need your help.  Please share, like, and invite your friends to our social media sites, request your free awareness products here, and … Continue reading Talynn’s Journey & BOS Awareness Day

   Those bright blue eyes look up at me and melt my heart. I wish I could take all the pain away and help you feel better. It's like you can never catch a break. We pray everyday for God to look over you and your healthiness and I know he is doing just that. … Continue reading Those bright blue eyes…

Would you like to help raise awareness for Talynn and BOS??  Click here to request FREE BOS awareness ribbons, stickers, and cards.   Don't forget to wear your gold and denim on April 6!  http://www.bos-foundation.org/bos-awareness-day