Raising a child with Bohring-Opitz Syndrome. Blogging about love, hope, life, therapies, and everything in between. I am a mother of a beautiful baby girl, Talynn. She has taught me so much in the little bit of time she has been here. I have learned how to become an advocate, nurse, teacher, physical therapist, respiratory therapist, dietitian, and most of all a MOM! The title MOM has a whole new meaning when your child has been diagnosed with a rare genetic syndrome called Bohring-Opitz! I am writing this blog to help raise awareness for this syndrome and to let others know what it is like walking in this journey!