I am more than happy to announce that Bohring-Opitz Syndrome now has a foundation!!! Carrie (a BOS mom) and myself had been discussing starting a foundation, we knew it was going to be a lot of work but also knew it was something that BOS needed.  With the help of our two additional board members (Sara & Gina) we were able to get the ball rolling.  For more information on the foundation please click the link below: www.bos-foundation.org