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Bohring-Opitz Syndrome

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Tag: Rare disease day 2015

Your stories: Talynn’s story

March 20, 2016Leave a comment

A very big thank you to Chad and Taylor for sharing their daughter, Talynn’s, story of her journey through her first year of life, and her diagnosis of Bohring-Opitz Syndrome.  You can read more about Talynn’s journey at her blog, Open Eyes, or follow them on facebook or twitter. – Ann Z Talynn Gurganus was born on … Continue reading Your stories: Talynn’s story

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