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Bohring-Opitz Syndrome

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Category: Talynn’s Journey

BOS Family Meet-Ups 

June 13, 2016June 13, 2016Leave a comment

As many of you know, Talynn has BOS . There are fewer than 60 in the WORLD! People living with BOS have daily struggles and can turn from completely happy/healthy to sick/miserable in minutes. If it wasn't for advice from other families living with BOS I am not sure where we would be today. We … Continue reading BOS Family Meet-Ups 

Benefit Hunt

May 24, 2016February 5, 2017Leave a comment

We are extremely blessed to have an amazing group of friends , family, and community. There are so many people who are putting a ton of time into this benefit hunt and making it great. Thank you to everyone involved and everyone who plans to attend. It means more than you all know. Our family … Continue reading Benefit Hunt

Little Four Eyes

May 5, 2016May 5, 2016Leave a comment

A few months ago, Talynn's pink glasses fell out of the diaper bag and her aunts dog got them. So we just used her navy ones until, we noticed ALL the scratches on the lenses. Talynn loves to chew on things so her little shark teeth had gotten a hold of the lenses pretty badly. … Continue reading Little Four Eyes

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